Undiagnosed Children’s Day 2018 – #UCDsuperhero

In 2013, I wrote a post on Undiagnosed Children’s Day.  I followed this with a post about My Not So Little SWAN the following day and then wrote another post in 2014.  This year, I thought I’d write another post.

Adam, essentially, has an undiagnosed disability.  As it affects his learning ability, he has been diagnosed as having a Learning Disability but this covers an awful lot.  Anyway, what has happened since the last posts in 2013 and 2014?  A LOT!

He can now travel independently to 4 different venues after going through travel training and being supported for the first few trips to make sure he knew the route.  He phones me to let me know he is on his way and phones his carer if he is on his way to them.  He also phones me if he can’t get the bus he is supposed to get or if the route is changed so I can support him through the change.

He can now make mince for shepherd’s pie or lasagne from scratch, including preparing the vegetables, with very little supervision or prompting from me.  Thanks to the Tupperware Herb Chopper which he loves using for cutting the carrot, onion and any other veg we decide to throw in!

He is a lot more sociable.  This year he decided that he wanted to go to the “inclusive” disco which is held once a month at Blueberry Academy.  He’s known about it for about 4 years and finally asked if he could go last August or September.  It wouldn’t be my cup of tea but he enjoys it.

He’s tried more volunteering roles at parkrun – he can now marshal, funnel manage, barcode scan and help with finish tokens without support.  He has also been the 2:1 run/walk pacer, on his own.  He was supposed to be pacing with me but we had run/walkers of different speeds so we split up with Adam pacing someone we know and her nephew while I took the parkrunners who we didn’t know.  We don’t know if it was deliberate or and accident but Adam switched the run and walk round so that it was run 1 minute, walk 2 minutes but this worked out better for our regular parkrunner’s nephew as he was struggling to run for 2 minutes.  Either way, well done to my boy for that.

He completed 1,000 hours of volunteering at SNAPPY!  He’s also volunteered over 25 times at parkrun.  He received a certificate at the Mayor’s Shine Awards for his volunteering and fundraising runs.

So, here’s to another year of improvement and skills/confidence building for Adam and for me.  We won’t be letting the fact that there is no disability diagnosis hold us back.  Adam is without doubt my super hero.

 

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